LGMD2A/R1 Global Patient Registry
Registry of people who have been diagnosed with limb-girdle muscular dystrophy (LGMD) type 2A, or calpain-3 deficiency (calpainopathy).
Have you been diagnosed with calpainopathy? Please register.
Previously, no database existed of individuals affected by calpainopathy. It is very important to assemble a patient registry so that treatments can be developed. This registry helps to:
Therefore, if you or a family member suffers from calpain-3 deficiency, please register yourself here. If you know of anyone else with the disease, please refer them to this web site and ask them to register as well. Once registered, you will receive e-mail updates on research progress and clinical trial opportunities. No personally identifiable information will be shared with researchers without your prior consent.
This is an international database open to patients living in all countries. If you have any questions, or if you are a researcher who wishes to access our database, please e-mail email@example.com.